FORCED STERILISATION OF WOMEN WITH DISABILITIES: BETWEEN MEDICAL PRACTICE AND HUMAN RIGHTS VIOLATIONS IN PORTUGAL
Resumo
Objective: The article aims to examine the practice of forced sterilisation of women with disabilities in Portugal, assessing its ethical, legal, and social implications. It seeks to highlight the contradiction between national legislation and international human rights standards, and to propose measures to ensure reproductive autonomy and informed consent.
Methodology: A qualitative, normative, and doctrinal approach was adopted, involving a critical analysis of Portuguese legislation, international conventions (such as the CRPD and the Istanbul Convention), case law from the European Court of Human Rights, and relevant bioethical principles. The study also reviewed reports and recommendations issued by international bodies and national institutions.
Results: The investigation reveals that forced sterilisation continues to be permitted under certain conditions in Portugal, despite international condemnation. Gaps in national legislation, ethical dilemmas between autonomy and beneficence, and persistent discriminatory attitudes were identified. The findings demonstrate that current practices violate fundamental rights, including dignity, physical integrity, and reproductive self-determination.
Conclusions: The article concludes that Portugal must urgently criminalise forced sterilisation, implement supported decision-making mechanisms, and promote cultural and educational measures to combat prejudice. Legislative reform, professional training, and inclusive public policies are essential to guarantee informed consent and equal rights for women with disabilities.
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AGGARWAL, K. K., & GUPTA, I. (2019, 31 August). In an action for negligence/battery for performance of an unauthorised surgical procedure…? MediNexus. Retrieved from: https://www.emedinexus.com/post/13609
ALMEIDA, M. de, SIMÕES, V., & SOROMENHO, F. (2022). From the Right to Motherhood to the Rights of Children in the Case of Soares de Melo v. Portugal. Lisbon: Universidade Católica Editora.
ASSEMBLEIA da República. (1984). Law No. 3/84, of 24 March - Sex education and family planning. Lisbon. Retrieved from: https://diariodarepublica.pt/dr/detalhe/lei/3-1984-661903
ASSEMBLEIA da República. (2018). Law No. 49/2018, of 14 August. Lisbon. Retrieved from: https://diariodarepublica.pt/dr/detalhe/lei/49-2018-116043536
ASSEMBLEIA da República. (2023). Resolution of the Assembly of the Republic No. 56/2023, of 1 June 2023. Retrieved from: https://diariodarepublica.pt/dr/detalhe/resolucao-assembleia-republica/56-2023-213815014
AUTONOMOUS COMMUNITY OF CATALONIA. (2021). Law 17/2020, of 22 December, amending Law 5/2008, on women's right to eradicate gender-based violence. Official State Gazette No. 11, 13 January 2021. Retrieved from: https://www.boe.es/buscar/act.php?id=BOE-A-2021-464
BEAUCHAMP, T., & CHILDRESS, J. (2001). Principles of biomedical ethics (5th ed.,). Oxford: Oxford University Press.
CALIFORNIA COURT OF APPEALS. (1958, 3 July). Hundley v. St. Francis Hospital. Retrieved from: https://case-law.vlex.com/vid/hundley-v-st-francis-892630479
COMITÉ CONTRA LA TORTURA. (n.d.). Information brochure no. 17. Retrieved from: https://www.ohchr.org/sites/default/files/Documents/Publications/FactSheet17sp.pdf
COMMITTEE ON THE ELIMINATION OF DISCRIMINATION AGAINST WOMEN. (1992). General Recommendation No. 19: Violence against women. Retrieved from: https://dcjri.ministeriopublico.pt//sites/default/files/documentos/pdf/rec_geral_19_violencia_contra_as_mulheres.pdf
COMMITTEE ON THE ELIMINATION OF DISCRIMINATION AGAINST WOMEN. (1999). General Recommendation No. 24: Article 12 of the Convention (women and health). Retrieved from: https://dcjri.ministeriopublico.pt//sites/default/files/documentos/pdf/rec_geral_24_artigo_12_conv_mullhers_e_saude.pdf
COMMITTEE on the rights of persons with disabilities. (2014). General Comment No. 1, on article 12: “Equal recognition before the law.” Eleventh session. Retrieved from: https://www.ohchr.org/en/documents/general-comments-and-recommendations/general-comment-no-1-article-12-equal-recognition-1
COMMITTEE on the rights of persons with disabilities. (2016). General comment No. 3 on women and girls with disabilities. Retrieved from: https://www.ohchr.org/en/documents/general-comments-and-recommendations/general-comment-no-1-article-12-equal-recognition-1
COELHO, R. A. A. (2017). Involuntary sterilisation in intellectual disability: social responsibility or best interests of the person. Integrated Master's Degree in Medicine, Faculty of Medicine, University of Porto. Retrieved from: https://catalogobib.parlamento.pt:82/images/winlibimg.aspx?skey=&doc=147674&img=35445
COUNCIL OF EUROPE. (1997). Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine. Retrieved from: https://dcjri.ministeriopublico.pt//sites/default/files/documentos/instrumentos/convencao_protecao_dh_biomedicina.pdf
COUNCIL OF EUROPE. (2011). Convention on preventing and combating violence against women and domestic violence. Council of Europe Treaty Series, No. 210, Istanbul. Retrieved from: https://rm.coe.int/168046253d
EUROPEAN COMMISSION & MARQUES, C. (2020). Charter of Fundamental Rights of the European Union – In simplified language. Publications Office of the European Union. Retrieved from: https://op.europa.eu/en/publication-detail/-/publication/d5c4b523-db7b-11ea-adf7-01aa75ed71a1/language-pt
EUROPEAN DISABILITY FORUM. (2017). Ending forced sterilisation of women and girls with disabilities. Fundación Cermi Mujeres. Retrieved from: https://www.edf-feph.org/content/uploads/2021/06/EDF-and-CERMI-Womens-Foundation-report-on-ending-forced-sterilisation-of-women-and-girls-with-disabilities.pdf
EUROPEAN COURT OF HUMAN RIGHTS. (2011, 8 November). Subject V.C. v. Slovakia, Application No. 18968/07. Retrieved from: https://hudoc.echr.coe.int/eng#{%22languageisocode%22:[%22ENG%22],%22appno%22:[%2218968/07%22],%22documentcollectionid2%22:[%22CHAMBER%22],%22itemid%22:[%22001-107364%22]}
EUROPEAN COURT OF HUMAN RIGHTS. (2016, 16 February). Fourth Section: Soares de Melo v. Portugal, Application No. 72850/14. Retrieved from: https://dcjri.ministeriopublico.pt//sites/default/files/case_soares_melo_v_portugal_portuguese_translation.pdf
EUROPEAN PARLIAMENT. (2023). Question for written answer E-001857/2023 to the Commission: Forced sterilisation of persons with disabilities in the EU. Retrieved from: https://www.europarl.europa.eu/doceo/document/E-9-2023-001857_PT.pdf
EUROPEAN PARLIAMENT & COUNCIL OF THE EUROPEAN UNION. (2024). Directive (EU) 2024/1385 of the European Parliament and of the Council of 14 May 2024 on combating violence against women and domestic violence. Retrieved from: https://eur-lex.europa.eu/legal-content/PT/TXT/PDF/?uri=OJ:L_202401385&qid=1719989708012
DIRECTORATE-GENERAL FOR HEALTH. (2013). Standard No. 015/2013 - Informed, clear and free consent for therapeutic or diagnostic acts and for participation in research studies. Retrieved from: https://direitodamedicina.sanchoeassociados.com/arquivo/norma-no-0152013-direccao-geral-da-saude-consentimento-informado-esclarecido-e-livre-para-atos-terapeuticos-ou-diagnosticos-e-para-a-participacao-em-estudos-de-investigacao/
FIGO (International Federation of Gynaecology and Obstetrics). (2011). Female Contraceptive Sterilisation. Retrieved from: https://wwda.org.au/wp-content/uploads/2013/12/FIGOGuidelines2011.pdf
GOMES, J. C., NETO, L., & VITOR, P. T. (2020). Convention on the Rights of Persons with Disabilities – Commentary. Lisbon: Imprensa Nacional. Retrieved from: https://imprensanacional.pt/wp-content/uploads/2022/03/Convencaosobreosdireitosdaspessoascomdeficiencia.pdf?btn=red
GUERREIRO, L. F. L., & NEVES, M. E. da S. (2022). Obstetric Violence – A reading on the bias of a society that suffers silently without knowledge of violent practices. Jusbrasil. Retrieved from: https://www.jusbrasil.com.br/artigos/violencia-obstetrica/1694512436
IRN. (2025). ENIPD – National Strategy for the Inclusion of Persons with Disabilities – 2021-2025. Retrieved from: https://www.inr.pt/documents/11309/284924/ENIPD.pdf
INTERNATIONAL CRIMINAL COURT. (1998). Rome Statute. Retrieved from: https://dcjri.ministeriopublico.pt//sites/default/files/documentos/instrumentos/estatuto_roma_tpi.pdf
JACKSON, E. (2003). Regulating Reproduction: Law, Technology and Autonomy. The Modern Law Review, 66(3), 478-481.
KENDALL, T., & ALBERT, C. (2015). Experiences of coercion to sterilise and forced sterilisation among women living with HIV in Latin America. Journal of the International AIDS Society. Retrieved from: https://onlinelibrary.wiley.com/doi/10.7448/IAS.18.1.19462
MESQUITA, L. V. (2024). The Status of the Accompanied Elderly in the Portuguese System – Some Procedural Issues. Electronic Journal of Procedural Law – REDP, 18(25), 286. Retrieved from: https://www.e-publicacoes.uerj.br/redp/article/view/81908
MEDICAL ASSOCIATION. (2009). Code of Ethics of the Medical Association, Regulation No. 14/2009, of 13 January 2009. Retrieved from: https://www.pgdlisboa.pt/leis/lei_mostra_articulado.php?nid=1434&tabela=leis
NEVES, M. do C. P., & OSSWALD, W. (2007). Simple Bioethics. Lisbon: Verbo.
OBSERVATORY ON DISABILITY AND HUMAN RIGHTS. (2016). UN makes recommendations to Portugal on the rights of persons with disabilities. Retrieved from: http://oddh.iscsp.utl.pt/index.php/pt/mediateca/eventos/item/263-22-04-2016-%257C-na%25C3%25A7%25C3%25B5es-unidas-fazem-recomenda%25C3%25A7%25C3%25B5es-a-portugal-sobre-os-direitos-das-pessoas-com-deficiencia
OBSERVATORY ON DISABILITY AND HUMAN RIGHTS. (2023). EQUAL Project – Equality before the law and the right to self-determination of persons with intellectual and psychosocial disabilities in Portugal. Retrieved from: https://oddh.iscsp.ulisboa.pt/noticias-e-eventos/noticias-pt/projeto_equal/
OFFICIAL GAZETTE OF THE BOLIVARIAN REPUBLIC OF VENEZUELA. (2007, 23 April). Organic Law on Women's Right to a Life Free of Violence, No. 38,668. Retrieved from: https://www.refworld.org/es/leg/legis/acnur/2007/es/130600
ORDER OF PHYSICIANS. (2009). Code of Ethics of the Order of Physicians, Regulation No. 14/2009, of 13 January 2009. Retrieved from: https://www.pgdlisboa.pt/leis/lei_mostra_articulado.php?nid=1434&tabela=leis
PORTUGUESE ASSOCIATION VOICE OF THE AUTISTIC. (n.d.). Nothing about us without us! Forced sterilisation in Portugal. Retrieved from: https://vozdoautista.pt/esterilizacao-forcada/
RODRIGUES, J. V. (2001). Informed consent for medical procedures in Portuguese law (p. 148). Coimbra: Coimbra Editora.
RODRIGUES, J. N. (2022a). Migrant and refugee children in Europe: A new perspective. In J. Zajda & Y. Vissing (Eds.), Discourses of Globalisation, Ideology, and Human Rights (Vol. 28, pp. 53–81). Springer, Cham. https://link.springer.com/chapter/10.1007/978-3-030-90590-3_4
RODRIGUES, J. N. (2022). The globalization of human rights for a global citizenship: New challenges. In J. Zajda, N. Davidovitch, & S. Majhanovich (Eds.), Discourses of globalisation, multiculturalism and cultural identity (Globalisation, Comparative Education and Policy Research, Vol. 29, pp. xx–xx). Springer. https://doi.org/10.1007/978-3-030-92608-3_3
RODRIGUES, J. N., & CABETE, D. C. R. (2023). Transnational families ‒ A vulnerability of migration. In S. Leitão & Y. Vissing (Eds.), Community structures and processes on lives of refugee children (pp. 1–18). Vernon Press.
RODRIGUES, J. N., & RODRIGUES, D. C. R. C. DE N. (2022). Social justice and human rights in the 22nd century – Equity principle. In J. Zajda, N. Davidovitch, & S. Majhanovich (Eds.), Discourses of Globalisation, Multiculturalism and Cultural Identity (Vol. 30, pp. 55–81). Springer, Cham. https://link.springer.com/chapter/10.1007/978-3-030-92774-5_4
RODRIGUES, J. N., & CABETE, D. C. R. (2024). The Council of Europe: The motor of the European Union’s legislative development in matter of promotion of human rights. JANUS.NET, e-journal of International Relations, 15(1). Retrieved from: https://doi.org/10.26619/1647-7251.15.1.8
SEOANE RODRÍGUEZ, J. A. (1998). Sterilisation: Spanish Law and Comparative Law. University of Coruña, Dykinson.
SILVA, A., FERNANDES, A. S., & ROMÃO, I. (2023, AUGUST). CEDAW: What remains to be done in Portugal 2022. Convention on the Elimination of All Forms of Discrimination against Women. Portuguese Platform for Women's Rights. Retrieved from: https://plataformamulheres.org.pt/site/wp-content/ficheiros/2023/10/relatorio-cedaw-versao-digital.pdf
STOTE, K. (2012). The Coercive Sterilisation of Aboriginal Women in Canada. American Indian Culture and Research Journal, 36(3). Retrieved from: https://api.fqpn.qc.ca/wp-content/uploads/2021/02/AICRJ_STOTE-STERILIZATION.pdf
UNICEF. (2006). Convention on the Rights of Persons with Disabilities and Optional Protocol to the Convention on the Rights of Persons with Disabilities. Retrieved from: https://www.unicef.org/brazil/convencao-sobre-os-direitos-das-pessoas-com-deficiencia
UNITED Nations Human Rights Office of the High Commissioner. (2025). Retrieved from: https://www.ohchr.org/en/ohchr_homepage
UNITED Nations General Assembly. (2013, 1 February). Report of the Special Rapporteur on torture and other cruel, inhuman or degrading treatment or punishment, Juan E. Méndez. Human Rights Council, Twenty-seventh session. Retrieved from: https://www.ohchr.org/sites/default/files/Documents/HRBodies/HRCouncil/RegularSession/Session22/A.HRC.22.53_English.pdf
United Nations. (2007, 30 March). Convention on the Rights of Persons with Disabilities. Retrieved from: https://dcjri.ministeriopublico.pt//sites/default/files/documentos/instrumentos/pessoas_deficiencia_convencao_sobre_direitos_pessoas_com_deficiencia.pdf
United Nations. (2012). General Comment No. 13. Committee on the Rights of the Child CRC/C/GC/13_18 April 2011, p.10. Retrieved from: https://direitoshumanos.mne.gov.pt/images/comentario_geral_13_crc_2011_formato_suporte_digitalpt.pdf
World Health Organisation (WHO). (2001). International Classification of Functioning, Disability and Health. Geneva, Switzerland. Retrieved from: https://iris.who.int/server/api/core/bitstreams/4f551812-7cc1-4ec4-9b75-7f3a98069c76/content
DOI: http://dx.doi.org/10.21902/Revrima.v3i49.8135
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